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Has Anyone Had Severe Hair Loss From Orencia? I’ve Been On It For 6 Weeks And All Of A Suddener My Clothes. I’m Brushing Off

A myRAteam Member asked a question 💭
Paris, KY
May 5, 2019
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A myRAteam Member

Ive suffered hair loss from a couple different treatment drugs. I notified my Rheumy right away & he said take boitin & folic acid. OTC folic acid didn't do it so he called in a script. I take 2-1mg tabs of folic acid & 5000mcg Biotin daily. It works!!! I have long hair & I freaked when it started falling out in little clumps every morning. I take more precautions now like wear my hair in a braid @ nite while I sleep. Use a large tooth comb & large bristle brush. But the biotin & folic acid have it under control!!
Hope this helps.
Karen

May 6, 2019
A myRAteam Member

I've never been on anything but methotrexate, but in 11 mos, I can't believe how much hair I've lost, and now my eyelashes are falling out, too. Apparently folic acid and biotin doesn't help for everyone!

May 5, 2019
A myRAteam Member

I’ve had hair loss for the past 5-6 yrs. Gets much worse after anesthesia for surgeries. Was in to see my dermatologist & happened to mention it to her and she said there’s a supplement called Viviscal that will help. Felt like the Dr had seriously recommended it, why not try. I’ve been taking it for about 3 years and it does help. No side effects and I order on Amazon Prime (just because it’s easier). You take 2/day - morn & nite.
Hair loss seems to be part of RA life.
Hope you get better!
Love, Rise🌺

May 6, 2019
A myRAteam Member

Oh my!!!! I would contact your doctor right away. I take 2 Folic Acids every morning and it has helped a lot, and I'm on Methotrexate.

May 5, 2019
A myRAteam Member

Hi, @A myRAteam Member, when I saw my rheumatologist last month, I actually had him check my vitamin D (which insurance don't pay for....$200!), and mine was in the normal range. Not sure what's up w/my hair loss. I have a hair appt tmoro. She's always surprised how much it's thinned just in 2 mos. Oh well! Glad yours has quit falling out😊👍!

June 2, 2019

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