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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hair Loss

A myRAteam Member asked a question 💭
Beaverdam, OH

Does anyone experience hair loss or thinning with RA or Fibromyalgia.... or with any of the medications? I'm just curious if I need to buy scarves 😏

March 7, 2019
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Answer Summary

Members overwhelmingly confirmed that hair loss and thinning is a common experience with rheumatoid arthritis, with methotrexate being the... Read more

Members overwhelmingly confirmed that hair loss and thinning is a common experience with rheumatoid arthritis, with methotrexate being the most frequently cited medication causing the issue, though prednisone, stress, and the disease itself were also mentioned as contributing factors. Several members shared practical strategies that have helped them manage hair loss, including taking higher doses of folic acid (up to 3 per day), biotin supplements (often 5000 mg daily), switching to gentler or more natural shampoos, washing hair less frequently, and using products like Nioxin or Aussie conditioner, while others found relief by stopping methotrexate or getting wigs that matched their natural hair. A recurring theme was the emotional journey of accepting hair loss as part of the disease, with members encouraging one another that inner beauty matters most, sharing wig-wearing tips without shame, and reminding each other that compared to the daily battle with RA, hair loss is manageable with grace and creativity.

A myRAteam Member

MO you are correct I believe, it was the detergent, but what can we do.... LoL 😁. And also about Tina. She will be beautiful no matter what.

Girl, I know you are new to all of this and it's fabulous to ask opinions, but at the end of the day you must decide where your confidence level is, we are all different and you will learn that what works for one will not work for all.

We all wish this had not happened and all wish we could go back magically in time to a place before all of this, I say don't hurt yourself in the past honey, that's not where you're going. Besides you are the same person, the real person, the only one who really matters......the inside you hasn't changed at all..... your you😁 just in slower form . Be that shining light we know you are, in whatever form YOU decide to butterfly into.

March 9, 2019
A myRAteam Member

I feel compelled to write this. I’ve worn wigs for years and no one can tell. My hair started falling out early, I decided for ME to buy the wigs because i enjoy looking put together...it’s the way I was raised, and I like looking good to ME. Here is a bit of insight, just call it MOs opinion. First, you don’t have to do anything but be who you are. Second, if you are loosing a lot of hair and your uncomfortable about it a suggestion would be to keep your hair short. Long hair is heavy, when tangled painful to comb, brush and you will pull some out. Don’t stress about it because you will find the more stress the less hair. If you go the wig route they will try to sale you the most expensive one, don’t buy it. You can get the wigs inexpensive you through the catalog. Again if you go this route stick to something close to the WSU you’ve styled your hair, you will be more comfortable. If you want to go wild go for it! It can be fun, my husband never knew what I’d look like when he got home from his reserve time. Lol when I turned 50 I had a new length,!style and tattoo.!yes, my lovely’s I have a wild hair lmao get it, wild hair lol. Sorry could not resist. Trust me I’m an expert on this. I’m on messenger and face book if you have questions and nope.... you don’t sale them or know anyone in the field. Sorry again I’m talking to much. It’s just I don’t want anyone to think less of themselves or unattractive because of hair.!it is not who you are...the inside you make up that. I have come to care about you all,!so there is my two cents, as long as this is make make it a dollar. Hugs

March 8, 2019
A myRAteam Member

I stopped coloring my hair after I began loosing it. That has helped a lot. My next step is to purchase a wig.Nothing top of the line, but would like to feel a little more put together on occasion. Beside, hopefully with summer coming, I can’t put a cap on my head😍

March 26, 2019
A myRAteam Member

I was told that when I started methotrexate that I might lose my hair. I didn't! My straight hair became curly! I'm delighted. Also, I've been told that the folic acid that you take concurrently with the methotrexate will/may help temper the hairloss.

March 10, 2019
A myRAteam Member

I had major hair loss when I had my first baby. I had really thick, long hair. I was off drugs for the pregnancy. I think my body was confused about changes in hormones, etc., but I'd wake up in the AM and run my fingers across the pillow to gather up the handful of hair I lost. I was nursing at the time, so I thought it might be that I wasn't eating healthy... it only took me 2 months to get back to pre-baby weight. I think that many major changes to your body can result in hair loss, etc.

March 9, 2019

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