So i understand narcotics are addicting. I understand im only 23 but i hurt all the time. Told me to get antidepressents okay did that. Doesnt help pain. Gave me nerotin for fibromyalgia. Still hurting bad. On RA meds. Still hurting really bad. But they are avoiding pain medication just cuz of my age at this point and im on my third doctor. Just let me have something for pain. Im crying understress with the pain and my job is very physical. I just dont get… read more
I’m so sorry. 23! That must be awful. Take the advice of a good rheumatologist. They’ll get you on proper meds. You have to or you’ll have joint erosion.
I’m 59 and newly diagnosed. Just started with Hydroxychloroquine and Sulfasalazine. They made me very ill. Not vomiting but just a total feeling of unwell ness. So, to find out which med was causing it, I stopped both and reintroduced Sulfasalazine. I got severe abdominal pain. A pain like no other. It took 6 hours for it to go away. Unbearable pain. I’ve had surgeries, illness, knee replacement and I’ve never experienced pain like that. So, that drug is out. Today I reintroduce Hydroxychloroquine. Scared but I have no choice. Just telling you this because what they say here is true, getting the right meds to control RA is a battle in itself.
I/you have to be strong and face this disease head on. It does bring out the fighter in us.
Stay strong, you can do this. Read, read, read. Learn all you can. Get the right rheumatologist, change your diet (absolutely helps greatly), plus you’re eliminating inflammatory foods which helps since RA is an inflammatory disease, and get some exercise of some sort.
Take care and keep us updated. ❤️
That mind over matter stuff never worked for me either especially when I could not lift my arms ONE INCH due to both shoulders flaring without wincing in pain!
Or when I was crying in the shower & needed my husband to help wash my hair because I could not lift my arms!
I would rock back & forth begging for the pain to go away & waiting for the prednisone to kick in a couple hours later!
I guess the mind over matter may work for some people that have low pain and when simple Tylenol may work on THAT kind of pain, but I know for a FACT that it will NEVER work for me when I get into some of these awful flares!
The ONLY thing that has worked for me to help deal with these major painful flares is the dreaded prednisone!!
I hear ya on that. When mine gets that bad I usually need a shot and I am better by days end but by using these it will shorten my life span but I want to live today and enjoy my family.
First thing forget your family doctor.. Get yourself a Rheumatologist..They are experts in dealing with RA and pain.. They understand...Good Luck..
Your talking to a lot of experts on pain sad to say. But I’m going to say to you what I’ve said to others, some say it worked for them, and it works for me. I also have RA and fibromyalgia , not fun at all. I was just diagnosed in October but have had active now that I know since the 90s. The pain center as we know is in the brain... therefore we need to assist our body/mind in learning. The mind is a huge control factor trust me. If you think of pain it becomes worse. Concentrate on the positives in your life, listen to music you enjoy, concentrate on the words, think of exceptional times in your life, something your grateful for. Find something that works. I use to have filling done without anything starting around 7. I would concentrate on the curtains and say lions and tigers and bears oh my, time after time. It worked. Just a few thoughts. I hope you find something that works for you.