Have anyone ever been misdiagnosed with fibromyalgia and had it turn out to be RA? I have. It was a hellish 2 years untreated, taking Lyrica I never needed to take. What a mess. Please share your story if you've experienced anything like this?
Xo
Answer Summary
Members shared experiences of fibromyalgia misdiagnosis, with several describing the challenges of being seronegative for RA, which delayed... Read more
I have both, along with Psoriatic arthritis, spinal stenosis, facets disease. Also Hidradenitis Supperativa, another nasty autoimmune skin disease. No fun, no life, tons of pain plus psoriasis, but that's pretty much under control from Otezla. I'm also on leuflonimide, Cymbalta, Zeljanz, prednisone, plus pain killers and topicals. Just had my right hip replaced 5 weeks ago due to avascular necrosis from prednisone use. Healing well, and such a relief from that mind numbing pain! Try to keep finding things to smile about. Some days easier than others! Thank gawd for my 2 dachshunds, they're real clowns! Lol! Anyway, what's your next move, or haven't your rheumy and you discussed that yet? Let us know, and I wish you lots of luck finding a treatment that works right away for you! Sincerely!
I have both RA and Fibromyalgia unfortunately.
This happened to my daughter dr still looking for correct meds. Found out I now have RA my right thumb to wrist, right knee, and right big toe. I have a paralyzed left shoulder, arm,nd hand from birth trauma.
I am too sero-negative. I have had at least 3 flare ups. This last one was so painful & miserable I didn't go anywhere for quite a while. Finally had enough, went to rheummy Dr. Took all kinds of blood and still only showing as borderline inflammatory. Believe it awful. Totally convinced that they(dr's) really aren't sure what is going on.
@A myRAteam Member They ran blood work several times- problem is I'm sero-negative so unfortunately I ended up getting worse before they could make a proper diagnosis based on clinical presentation. It sucks! I responded extremely well to corticosteroids and went for a second opinion and thats when the light went on. I just wish my last rheummy would have paid closer attention to the symptoms so I could have started treatment sooner :/