I can say that I finally am at a content place regarding my daily pain levels (without the use of any pain meds might I add). At this point I believe it is safe to say that Remicade is doing it's job.
However, my quality of life is still piss poor. Fatigue has always been a chief complaint and at this point I don't know what to do. I don't have the stamina to do much of anything and I require more than frequent breaks and cannot make it without multiple naps to get me through… read more
Ugh thats the biggest fight for me too. Im currently fighting fatigue with coffee, red bulls and diet coke. Caffine is my go to. The other thing was my doctor put me on Pristique. Its an anti depressant and i have found that when i take it as soon as i wake up, it helps me get through. I am a person who could sleep 20 hours a day. Without the pills and caffine, im not sure i would make it. Another thought would be your Vitamin D and B12 levels. I take those supplements as well and can tell a difference. Good luck. Stay positive...the CPAP may be the trick! Believe! Wishing you energy and joy
Sounds like sleep apnea. I felt the same way. I could sleep all night then nap all day. I would fall asleep standing up in the bathroom in the middle of the night. I ended up so run down that I got mono. Give your doctor lots of feedback once you are on the cpap machine. You may need to try several different masks and your doctor may need to adjust the air flow. Good luck!
My husband uses a bipap and does get energy relief I hope you do too.
Fatigue/tiredness are my chief complaints as well, and having fibromyalgia makes it a double whammy! The flip side of this is that I also have insomnia and sleep apnea. Did a sleep study, was diagnosed with sleep apnea, got &, use the CPAP, and I notice no difference in my fatigue. My 1st rheumo put me on Adderall to help with the brain fog, as well as my tiredness. When I had to find a different rheumo because of a insurance change, the new rheumo refused to prescribe it, so my PCP did for about a year, but insisted I go to a Psychiatrist to be tested for ADD. I did test positive, but it's unclear if it's the brain fog, adult onset ADD or if I've had it my whole life and it just has "come into full bloom" due to my chronic illnesses. To answer your question though, it helps - but it's not the "be all to end all." Oddly enough, it works better on some days than on others. My guess is that it works well on the days after which I managed to get 5-6 hours of uninterrupted sleep. It's worth a try! Keep us posted!