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Does Anyone Have An Increase In Herpes Outbreaks With RA Or Maybe From Meds?

Does Anyone Have An Increase In Herpes Outbreaks With RA Or Maybe From Meds?

Possibly from compromised immune system. My rheumatologist doesn't think so but sure has been happening every 4-8 weeks This causes fatigue & headaches, feel flu like.

A myRAteam Member said:

Sorry you are dealing with those darn sores. The point of the meds are to help supress your immune system, thats why if you have a surgery or procedure of some sort, the doctors make you stop taking them. Unfortunately, with the supression, it can cause the blisters to rear their nasty heads. I used to get them all around my mouth. Now i just get them in my nose. I’m on humira. The doc gave me acyclovir. I found the cream works best. When i start to feel one coming up, I apply it like crazy. Most of the time I can catch it, but if not, it does help heal them faster.

posted over 2 years ago
A myRAteam Member said:

Interesting question! I had the typical cold sore herpes virus which traveled up into my nose after a lengthy dental procedure on my front teeth. To make a long story short, I've been on acyclovir (anti-viral med) for years and until this year I had required the maximum oral daily oral dose. I ran short of the med while traveling a few weeks ago so lowered the dose until I could get some more med. I did very well on a lower dose and have left it at that, and have been pondering whether either the RA or the RA meds are the reason I'm doing better. And now when I read @A myRAteam Member 's comment about methotrexate helping her, I'm going to ask my rheumy at my next follow-up. Just saw her yesterday but hadn't read this Q/A until today. I hope there's a correlation and that if you take mtx, it will help you also!

posted over 2 years ago
A myRAteam Member said:

Well this is a tricky one. I suffer from cold sores and I tend to get them in cycles. I can get 4 or 5 in the space of 3 months and then nothing for 12 months. Surprisingly I seem to get fewer CS since I started taking Methotrexate. I have noticed though that if my temperature rises for any reason (even just hot weather) this can trigger an episode. When I started menopause I had constant CS for about 3 years, it sure was miserable. Hope yours are on the mend soon.

posted over 2 years ago
A myRAteam Member said:

Thank you all for your comments to my question. At least I feel validated instead of floundering on my own & always wondering. The outbreaks have just been the past 2 years , I'm off mtx for years but started plaquenil 2-3 years ago & biologics for 6-7 years. I just feel that either the RD or meds are lowering my immune system to trigger this

posted over 2 years ago
A myRAteam Member said:

Yes I certainly do. Also the cprners of my mouth look like I sliced open with a razor blade.
I just had my rheumologist order that acyclovir pre- infusion.

posted over 2 years ago
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