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Ra Flares During Menstrual Cycle

A myRAteam Member asked a question 💭
Woodinville, WA

For the ladies who suffer from RA. Have you noticed an increase in flare activity right before or during your menstrual cycle? These flares have become debilitating and I'm wondering if there is anything I should ask my rheumy about. Any treatments, additional medications, etc.?

August 29, 2018
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Answer Summary

Members overwhelmingly confirmed experiencing worse RA flares right before and during their menstrual cycles, with many describing the pain as... Read more

Members overwhelmingly confirmed experiencing worse RA flares right before and during their menstrual cycles, with many describing the pain as debilitating and validating that hormones play a significant role in autoimmune disease activity. Several members shared practical approaches that helped them, including checking iron levels for anemia, discussing birth control or IUD options with their gynecologist, and in more severe cases considering procedures like ablation or hysterectomy, though some cautioned about long-term effects of hysterectomy at a young age. A recurring theme was the importance of openly discussing menstrual-related flares with both rheumatologists and gynecologists, as many members felt dismissed or hesitant to raise the issue until realizing how common the connection truly is.

A myRAteam Member

My pain level is definitely worse for the days before and during my period. I mentioned this too my Rheumy and he told me that hormones play a huge roll in RA.

July 13, 2020
A myRAteam Member

I have found that weight plays a huge part in this for me.. If I am 15 or more lbs over weight for my BMI.. My cycles are heavy, cramps are extreme and I flair horribly.. It becomes debilitating.. I now do my very best to eat clean and exercise daily to control these challenges.. Bad food is just not worth the pain..

February 26, 2019
A myRAteam Member

I would say yes. Auto-Immune is hormone related (depending on the person, I am sure) Quick story about me, my hormones and RA. I was a late bloomer and had endometriosis at a young age. The doctors did surgery and ended up removing my left ovary and removing the endo from other areas. 1 year later, the endo came back and the doctor put me on medically enduced menopause (it lasted 6 months) When my body started producing the hormones again naturally is when my RA symptoms began. I was formally diagnosed with at 32 (4 years after) At the age of 36 I chose to have a hysterectomy since the pain of the periods was intollerable. So yes, it definitely can be linked.

@A myRAteam Member - Each woman makes her own choice and I realize you didnt ask for advice, however if I could go back, I would not have chosen a hysterectomy at such a young age. It has changed a lot of things in my life including my mood, my skin, my libido...lets just say a lot of things. I am sure you are weighing all the options based on your situation. Good luck to you!

September 3, 2018
A myRAteam Member

I thought I was going crazy until I saw this post. I never mentioned this to my rheumatologist in fear of him thinking I was going crazy. But yes every month 1 week before my period I have a increase in flares. Since being on Enbrel and Methotrexate they are not as frequent but if I forget a dose it will rear its ugly head. This article made me feel much better and made me realize I need to stop worrying about what people might think about me.

July 10, 2020
A myRAteam Member

I used to get major flares every month. Menopause was a gift from God!

February 27, 2020

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