I'm so new with this, I'm not even sure of what to ask. Updated to provide a bit of background: I've been having joint pain, mostly in my left knee and toes, for a few years. I've mentioned it to my doctor pretty much every visit, as well as being tired, etc. The answer, at least a couple of years ago, was to take 800 mg of ibuprofen three times a day. Then I noticed I couldn't wear some of my dress shoes, because of the way my big toe joint sticks out.… read more
I’d get new doctors. Your regular doctor should have been more alert and aggressive with the initial treatment. And your RA doctor should have spent much more time with you! I went through 3 doctors before finding my doctor! She’s amazing, extremely punctual, informative and always available by email if I have a question or problem between my appointments. We drive 60 miles to NYC for her, which takes at least 1 1/2 hrs , but we only have to go every 3 months, and she is well worth the drive! So look around, check with your insurance company, check for nationally recognized doctors and hospitals.
As agressive as your RA is, it ashamed your doctor weighted so long to take notice. For the future you need to take charge for your health. Keep files on your visits, medications, and copies of your tests. If you change doctors you will be better off having your records with you.
I took pictures of my fingers ,feet, and skin issues. If you feel like your not getting good care move on and find a doctor who will work with you. I always try to be the first appointment because later ones always get pushed back. Learn about the newest information about RA as new things come out every year. Good luck ..just have fun
@A myRAteam Member
Welcome to the site!
Try to write down your concerns. Where you pain is, do you have exhaustion. I put notes in my cell phone now so I don't forget to ask. If this is your initial consultation. They will probably ask you (or should) questions. Be sure your Rheumatologist has a copy of your blood work. that will show your RA levels.
The best advice I can give you is if you feel like you RA doctor is not listening to you, keep that doctor while you look for someone else. My first doctor didn't listen or didn't care. When do you see your Rheumatologist? Hugs.
Do you know what RA is?, What the tests were and what they mean. What course of action does your Dr. plan, If medications are going to be used what are they and how do they work. Are there any side effects with these meds? Diet and exercise? Pain control if needed? Just for starters. Helaurin, the more you know, the better your understanding. You will do well and prayers for you.
I see the RA doctor supposedly at 8:45 am tomorrow. I say supposedly, because my first appointment, she was running 90 minutes behind schedule. I'm hoping the wait won't be so long this time. She has a copy of all my blood work - I brought it in to make sure. :)