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My rheumatologist said I was sero-.. Thanks for all answers or inputs!

June 11, 2018
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Answer Summary

Members rallied around the original question about seronegative RA diagnosis, with many sharing that they too were diagnosed based on... Read more

Members rallied around the original question about seronegative RA diagnosis, with many sharing that they too were diagnosed based on symptoms, imaging, and inflammatory markers rather than positive RA factor labs. Several members described their diagnostic journeys, including elevated sed rates and CRP levels, X-rays showing joint damage, and MRIs that confirmed the condition even when bloodwork remained negative or inconsistent. A recurring theme was the frustration of labs not always telling the full story and the importance of finding a knowledgeable rheumatologist who can diagnose by clinical presentation, repeated testing over time, and imaging rather than relying solely on standard blood tests.

A myRAteam Member

My labs showed extremely high inflammation, but not the RA factor. I was diagnosed based on that, medication effectiveness, pain level, and pain type and location.

June 26, 2018
A myRAteam Member

I wonder if my doc will order an mri of my whole body.. Because all my joints are involved..

June 22, 2018
A myRAteam Member

It took an extreme amount of labs and ones that not everyone gets to me to be diagnosed. But my RA doctor knew just by looking that I had it,but it took me years to find him! So keep trying if you know for sure you have it.

June 20, 2018
A myRAteam Member

I have sero-negative negative RA, and it was several hereafter my symptoms began before my inflammatory markers (SED rate and CRP) increased.

June 14, 2018
A myRAteam Member

Mine too - and invariably when its clinic day I am fit as a fiddle, snuff to make you ill, cos you can walk out of there 4 hours later to find when you get out the car your knee is having a flare up

June 12, 2018

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