I was first diagnosed with lupus, sjogrens and then RA. I started out with pain and minimal swelling over my joints and red, dry eyes, that would come and go. Then several years later the pain intensified and my ankles and the balls of my feet were so swollen I could not walk. There was bruising over each ankle. Then my knuckles looked like they had golf balls on them, severe swelling that also affected both wrists and elbows. I also have nodules. I test sero negative, but my… read more
I have lupus and RA, both cause major swelling. Just have to get on the right meds to control them. It's hard with two disease that cause issues. Your Doctor can do a test called a Vetra DA. This test will tell if it's your RA or Lupus active or both. I get it done every 3-6 months.
Vectra D test is a wonderful indicator of the amount of inflammation you are experiencing it. I went in to have my infusion and the nurse said she did not think I was going to be able to have it because I had a low-grade fever and I looked sick, Dr saw me in next room examined me and brought me into the infusion room and said I want her to have the IV today first give her Vectra D blood test and then Solu-cortef iv (iv prednisone), then started Remicade which I was on at the time. The Remicade IV takes two hours to infuse, I was feeling very poorly, halfway through the infusion I looked across to another patient and I said I don’t want to jinx myself but is it possible I am feeling better and another patient said oh yeah, what should I have and honey is it The Remicade IV takes two hours to infuse, I was feeling very poorly, halfway through the infusion I looked across to another patient and I said I don’t want to jinx myself but is it possible I am feeling better and another patient said oh yeah, what you having honey is a ‘Flare’ I finished the infusion went home rested a bit I hadn’t been able to eat for days, had some scrambled eggs toast and tea, the next morning I was up at seven I did three washes I cannot believe how good I felt, you don’t realize how bad you can feel, thank God my doctor had the wherewithal to give me the infusion when the nurse thought I was getting the flu. When the Vectra the results came back the doctor said they were extremely high and I was in a full-blown flare when I had the blood drawn.
Breeze, thanks for sharing, I see my RA this month and will ask about Vetra DA test. I have lupus and RA and the swelling is living in my ankles, behind my knees, shoulders and wrist would like to see it move out.
Thank you for your responses. I used to get attacks or flares of RA, now its constant and I don't know what its like to not be in pain. I have feelings like the flu every morning and sometimes it is throughout the day. The swelling in-between my knuckles and ankles, knees is like puffy fluid. For the last 2 years none of it has gone away. I have tried methotrexate which made me sick, lost some of my hair and gave me bad headaches.(It did help the swelling though). Then I took humira and that made me very sick and worsened my symptoms the first time I took it. Now they want me to try Imuran. I don't know if its worse to go through this or get lymphoma from all these immunosuppresants. I take prednisone 10mgs a day as well as tramadol, gabapentin and baclofen. Ugh, sorry ladies, I had to vent! Thank you for listening. Thank you Breeze for the name of that test, I am going to mention it to my Rheumatologist when I see her in a couple of weeks.
When you have RA, you usually have swelling, redness and the area feels warm to the touch. It depends on how severe the RA attack is. You usually also run a slight fever also and feel like you have the flu. I don't think that you have swelling with lupus or psoriatic arthritis. What you are experiencing sounds like typical RA symptoms.