In late October, my symptoms began to flare up out of nowhere. Initially, my eye doctor said I had uveitis (inflammation in my right eye), days later my body was in a full flare. I had never felt anything like it. My primary doctor ran labs, most of them were normal, however, my CCP was 26, my CRP was 9.1. She felt very confident that with my symptoms combined with my labs, I have RA and they were able to catch it early. I had to get on a cancellation list… read more
Personally everyone needs to do their own research, don't let just the doctors tell you everything, because they don't. I just looked up Seronegative RA, there are 2 types of RA positive & negative. Seronegative is the milder course of progression compared to the Seropositive disease. This autoimmune disease doesn't just affect your joints but can affect the skin, heart & other organs. Research for your own peace of mind. Do your research on the drugs that they want you to take.
There is lot of information about all those diseases on the web. You need to be your own advocate an do your research. That will help you get closer to diagnosis and treatment.
I was fortunate that I was diagnosed the first time I seen the rheumatologist. All of my inflammation markers were elevated, I had big nodules...etc...Doctors with RA are like Doctors with MS, all the lab evidence and MRI evidence is there but for whatever reason they refuse to apply the diagnosis. If they only knew how much that sucks for the patient. My advice......keep looking for a doc that is willing to be proactive for you.
I started in 2012 getting tested for Lupus/ scleroderma after 2 years of my Double stranded DNA not changing they made me feel like it was all in my head i got angry and stopped going. Then in 2015 i had a huge flare up and my new Doctor began running tests again checked my ANA and it was stiil high. In 2016 I started seeing a new rheumatoid Dr in Rochester she tan me through multiple test in 1 day and set up an MRI the same week. The MRI lit me up like a Christmas tree full of arthritis. Finally, its not in my head and what is happening to my body is real. Right now my tendons are starting to tighten in my hands making it harder and harder to hold things.
I was lucky to find a rheumatologist because being so young I had loads of misleading conditions one doctor said it was growing pains another that the pain was just in my head then I met the best doctor who knew exactly what was a matter and was my doctor from 14 years old to 40 years old and taught me how to manage my condition