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How Many Rheumatologists Does It Take To Get A Diagnosis?

How Many Rheumatologists Does It Take To Get A Diagnosis?

In late October, my symptoms began to flare up out of nowhere. Initially, my eye doctor said I had uveitis (inflammation in my right eye), days later my body was in a full flare. I had never felt anything like it. My primary doctor ran labs, most of them were normal, however, my CCP was 26, my CRP was 9.1. She felt very confident that with my symptoms combined with my labs, I have RA and they were able to catch it early. I had to get on a cancellation list… read more

A myRAteam Member said:

Personally everyone needs to do their own research, don't let just the doctors tell you everything, because they don't. I just looked up Seronegative RA, there are 2 types of RA positive & negative. Seronegative is the milder course of progression compared to the Seropositive disease. This autoimmune disease doesn't just affect your joints but can affect the skin, heart & other organs. Research for your own peace of mind. Do your research on the drugs that they want you to take.

posted about 2 years ago
A myRAteam Member said:

There is lot of information about all those diseases on the web. You need to be your own advocate an do your research. That will help you get closer to diagnosis and treatment.

posted over 1 year ago
A myRAteam Member said:

I was fortunate that I was diagnosed the first time I seen the rheumatologist. All of my inflammation markers were elevated, I had big nodules...etc...Doctors with RA are like Doctors with MS, all the lab evidence and MRI evidence is there but for whatever reason they refuse to apply the diagnosis. If they only knew how much that sucks for the patient. My advice......keep looking for a doc that is willing to be proactive for you.

posted over 2 years ago
A myRAteam Member said:

I suffered for a few years with no diagnosis - then found a RA doctor who seemed to use me as a guinea pig but did diagnose me with RA and Fibromaligia . Walked out of his office after he refused to take me off of high doses of prednisone and methotrexate. Got into a waiting period for a cancelation to get into a new Dr. The whole time supporting my family of 6 in Real Estate as a broker. Got in finally and he begin testing the RA and working with me. This was in the 90’s. He recently retired and now I am with a young RA Doctor . the last 19 years have been so much better- Meds keep me in remission- I am still working full time at 72 yrs and so thankful for these new meds. I have gone out of remission twice in past 20 yrs but each time they worked with me to get things on track. Forever thankful ! Have found PT very helpful, forcing myself into getting my 10k steps each day- massage therapist very helpful also. It takes a lot to focus to work with all your doctors and work a plan for wholeness

posted 10 months ago
A myRAteam Member said:

I started in 2012 getting tested for Lupus/ scleroderma after 2 years of my Double stranded DNA not changing they made me feel like it was all in my head i got angry and stopped going. Then in 2015 i had a huge flare up and my new Doctor began running tests again checked my ANA and it was stiil high. In 2016 I started seeing a new rheumatoid Dr in Rochester she tan me through multiple test in 1 day and set up an MRI the same week. The MRI lit me up like a Christmas tree full of arthritis. Finally, its not in my head and what is happening to my body is real. Right now my tendons are starting to tighten in my hands making it harder and harder to hold things.

posted over 2 years ago
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