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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have You Taken Xeljanz

Have You Taken Xeljanz

Hi everyone. I'm starting Xeljanz this week and I was wondering about your experience if any of you have taken it. I hate to say it sounds a lot like Actemra which I had a tough time with only Xeljanz is pill form. Thank you in advance for your response. Corrie

A myRAteam Member said:

@A myRAteam Member, actually Xeljanz is working out pretty well for me. I do have to get bloodwork every 6 weeks. My first bloodwork was great. I was concerned about the weight gain as well I was actually terrified but I have lost weight. I think I've lost about 5 lbs and it's great for hair growth as well. I recently learned it's used for alopecia. I now see hair growing in areas that were bald. Anyway, whatever you decide or should I say the insurance decide, I wish you the best. 🌷🌷

posted over 4 years ago
A myRAteam Member said:

I've been on Xeljenz for close to 18 months and having good luck with it

posted over 4 years ago
A myRAteam Member said:

I was on it for a year and and half for a research program through my doctors office. I was eligible because I have been on methotrexate for quite awhile and they wanted people who have been on that to see how the Xeljanz worked. I did wonderful on it . I had no pain what so ever! I could actually do things I haven’t been able to do for years. But then the research came to an end.😞 since I have been in terrible pain in every joint I have.i can not afford the co-pay for this medicine. It’s very expensive. I called The Pfizer company who make it and filled out forms for financial help. I may be getting it for free or for a very small co-pay that I can afford. Praying for the best outcome. I hope you do well on it! God bless!

posted almost 4 years ago
A myRAteam Member said:

I have been on a research program with my RA doctor office for a year taking the xeljanz along with my methotrexate. They wanted to see how well it worked with patients who take methotrexate. I did very well on it. I have had no RA pain or swelling. I am now on the second phase of the research and am still taking Xanjel but most likely the methotrexate is a,placebo but they don’t tell you that. So far it hasn’t been too bad. Hopefully once this research is over there will be a generic for xeljanz because I know it’s too expensive for me to buy. Hope you do well!

posted over 4 years ago
A myRAteam Member said:

Corrie sorry I answered you twice but no I did not gain weight intiallly

posted over 4 years ago
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