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Feedback On Humira Good Or Bad

A myRAteam Member asked a question 💭
Bullhead City, AZ

I will be starting humira in a few days and would appreciate any feedback good or bad I have only had simponi infusions without success thank you in advance hugs 🤗

November 16, 2017
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Answer Summary

Members shared mixed experiences with Humira for rheumatoid arthritis, with some finding it effective for months or years before it stopped... Read more

Members shared mixed experiences with Humira for rheumatoid arthritis, with some finding it effective for months or years before it stopped working, while others experienced allergic reactions, side effects like low blood counts or rare demyelinating symptoms, or found it simply didn't help their pain. Several members emphasized that everyone's body responds differently to biologics, encouraged the original poster to monitor for any side effects and communicate them immediately to their rheumatologist, and suggested keeping emergency contacts nearby for the first injection. A recurring theme was cautious optimism paired with practical support, including tips on injection technique, praise for Humira's patient assistance program, and reassurance that if Humira doesn't work, other medications with different mechanisms are available to try.

A myRAteam Member

I was on Humira and felt well on it. Only switched to Enbrel because Humira didn't have latex-free injection kits. I think they do now. Humira worked well for me, outside of the latex allergy. They also have a patient assist program and I found their staff very willing to answer any question I had.

November 17, 2017
A myRAteam Member

Sheri, I don't know if you remember, but I had one lone injection of Humira. It seemed to help, even overnight! However, it turned out I was allergic to it. Had itching and eventually, could feel it in my throat and tongue. It was too dangerous for me to try another injection so switched to Enbrel. I have seen nothing good while on the Enbrel and hope to be switched again in January.

November 17, 2017
A myRAteam Member

I had some success with it for about 9 months, then failed. That has been a common pattern for me with all of the tnf inhibitors. Drugs with a different mechanism of action, like Actemra are a good thing to try if you don't get results with Humira. Best wishes for successful treatment.

November 17, 2017
A myRAteam Member

Hi- I was on humira for about 7 years- it was a blessing for me - downside- I ended up with a rare side effect- demylinating and mimicking ms- not good- can never go on that type biological again- I will stress that you look at all the possible side effects on anything you go on and make sure you tell your Rheumatologist when anything comes up- and stress this as I was poppies so it took months to get to the point I could not hardly function- just want to make sure everyone gets this! Good luck!!

November 17, 2017
A myRAteam Member

I have been on a lot of different medication combinations. None of them worked really well. The last combination was methotrexate and humira. After four injections I broke out in hives all over my body. So now I will be trying orentia. Humira is a great drug but like anything else it can cause allergic reactions. Good luck and hugs.

November 17, 2017

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