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Are You Satisfied With The Treatments You Receive For RA?

myRAteam asked a question 💭
San Francisco, CA
October 16, 2017
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Answer Summary

Members shared a wide range of experiences with RA treatments, with satisfaction levels varying dramatically based on medication... Read more

Members shared a wide range of experiences with RA treatments, with satisfaction levels varying dramatically based on medication effectiveness, side effects, and doctor-patient relationships. Several members described successful medication combinations including Xeljanz, Orencia, Remicade, Enbrel, and methotrexate, while many others expressed frustration with trial-and-error approaches, medications that stopped working over time, severe side effects, insurance barriers, and doctors who did not listen to their concerns. A recurring theme was the importance of finding a compassionate rheumatologist who treats patients as individuals rather than just managing lab results, with many members emphasizing self-advocacy, lifestyle modifications like water exercise and diet changes, and the reality that 'satisfied' often means managing rather than eliminating symptoms.

A myRAteam Member

I pray you all will go to Amazon and get the book "The Arthritis Breakthrough" by Henry Scammell ALso my story and many others are in another book also on AMazon "Our Roadback" and you can get on a website
called "Roadback foundation".. and learn all about how a simple antibiotic can put RA in remission.. 10 years ago i read the book and did it and I'm still in remission....PLEASE CHECK IT OUT... IT WORKS !!

November 10, 2017
A myRAteam Member

I agree with you Maxwell and my rheumatologist tells me it's best for me to get exercise in every day even if it's small walks. I saw a pain management Dr and he also told me I need to excercise. The problem with that is when I started my pain meds I felt free of pain and overdid it. The most important thing I can tell you is to listen to your body.

Good luck , don't overdo it, and have a great afternoon,

Jen

November 20, 2017
A myRAteam Member

Everyone is different. I took Rheumacaid infusions back in 2002/2003 (6 months). It was a nightmare! I was allergic to it, and got very sick. Also, I ended up in hospital and developed TB. I lost over 60lbs. If you do start treatment, (any treatment) you have to be very vigilant about your care, and make Doctor listen when something feels wrong. Good luck!

October 21, 2017
A myRAteam Member

After a long talk with my ra doc I was able to get rid of 4 meds that I just did not need they where wiring against each other now it has been 2 weeks without the other meds and I am starting to feel better

November 9, 2017
A myRAteam Member

@A myRAteam Member Was on Enbrel for 2 plus years was my absolute favorite. I worked out 2xs a day, worked a job 40 plus hours a week. Had periods of pain and had to rest but loved living. I had problems with co-pay too. I called the company for Enbrel asked for a case worker and discussed the co-pay, regardless to say I was happy. Best of wishes Never waste 1 minute of life.

February 1, 2018

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