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How To Explain RA

A myRAteam Member asked a question 💭
Grand Rapids, MI

How do you explain RA to people when they say ""oh yeah i have arthritis too..i just take aleve .."" It seems nobody really understands what you go through and when you tell them they look at you like your exaggerating..

July 6, 2017
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Answer Summary

Members bonded over the frustration of trying to explain rheumatoid arthritis to people who compare it to regular arthritis, with many sharing... Read more

Members bonded over the frustration of trying to explain rheumatoid arthritis to people who compare it to regular arthritis, with many sharing that most people don't realize RA is a systemic autoimmune disease that attacks joints, organs, and causes debilitating fatigue, not just aching from wear and tear. Several members found success in avoiding the word arthritis altogether, instead saying they have an autoimmune disease or immune disorder, while others use direct comparisons like explaining that their immune system actively attacks their own body or that RA is to arthritis what breaking every bone is to a sprained ankle. A recurring theme was the emotional toll of feeling dismissed, misunderstood, and alone in their struggle, with many members choosing to save their energy by only educating those who genuinely care, while finding comfort and validation in this community where everyone speaks the same language.

A myRAteam Member

They really can't understand unless they have it. I just smile and change the subject. That's why this support group is so nice to be a part of we all speak the same language

July 10, 2017
A myRAteam Member

I like to generally respond with, "But does your immune system actively attack your joints? Mine does" And then you can go on to educate so people can understand the difference. Gives me an odd satisfaction haha

July 7, 2017
A myRAteam Member

I might start calling it rheumoid disease! Then if they say oh I have arthritis too I will say you have arthritis but I don't! I have rheumoid disease and it's totally different! Then I will see what kind of reaction I get!😍

July 6, 2017
A myRAteam Member

Yep people really don't understand, so if they are really interested , i find the simplest way is to just say that it is ones own white blood cells attacking ones tissue thinking its the enemy , and that besides attacking ones cartilage it also causes inflammation in the fluid surrounding the joints hence the swelling and subsequent heat and pain and immobility . But for real ignorant, il just say oh ok.... or for those who imagine they have RA, il say don't worry because if you did have it , the sheer pain and immobility would let you know

October 2, 2017
A myRAteam Member

I like the answer simply put...it's an auto immune disease....I'm going to try that!

July 18, 2017

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