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Is Anyone Else Considering Cutting Dosage And Hoarding Or Weaning Off Meds In Case AHCA Passes? What's Your Plan?

Is Anyone Else Considering Cutting Dosage And Hoarding Or Weaning Off Meds In Case AHCA Passes? What's Your Plan?

If AHCA passes, Medicare will be gutted. I can no longer work except sporadically, so I depend on it exclusively for RA medications, migraine preventives and rescue injections, and all the med-related testing that goes along with RA. I am worried that if I don't start phasing back sooner rather than later I will suffer when my insurance disappears. I already only use migraine injections when I… read more

A myRAteam Member said:

Don't suffer today because of something that may/may not happen in the future.

posted over 3 years ago
A myRAteam Member said:

Yes, but Medicaid IS my insurance, and the only coverage I have. But it's good to hear about others' experience with different RA meds; I am still early into the (slow-in-coming) diagnosis, so still on Methotrexate. That will likely change later this summer, as MTX seems ineffective.

posted over 3 years ago
A myRAteam Member said:

I have hope that my Rheumy would vote for me to be able to afford this Xeljanz I'm on or whatever other biologic I'll be on, and I could never afford on my own. To get my insurance to let me have another year of it, My Rheumy vouched for me and said that my health has improved at least 20% more, and they approved it. I know that if we have to pay out of our own pocket, I won't be on biologics, but on Prednisone and others because we can't have huge doses of Prednisone for long periods. Other non-biolgic meds. just never did much for me or affected my liver.

posted over 3 years ago
A myRAteam Member said:

So far, all the meds I'm on are covered by Medicare or SilverScript (part D)

posted over 3 years ago
A myRAteam Member said:

Consider contacting the pharmaceutical company directly who make your medication, most will have hardship plans and will save you a ton of money. But if you are on medicare none of them, that i have researched so far, will not offer you a hardship program because you are covered by a federally insured health plan. Don't ask me why but its madding. The market place is a joke, they say one thing and offer you something else, that is, if you qualify. Very sad. How do I know? I worked for CMS ...enough said.

posted over 3 years ago
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