I can so totally understand what you're talking about. I wake up every day with terrible pain, but on a good day, that eases off in about 30 minutes once I move around. However, if the barometric pressure is changing or it is rainy, cold or humid, forget it, I'm going to be in awful pain all day long. Plus, if I sit in one place for over 20 minutes, getting up from my chair and taking a few steps is so painful!
The pain is like an old memory... sometimes quiet in the background... and other times... comes rushing to the forefront like a bull. Some days are great.. then some days are horrible... weather changes, AC temp, if I burp... can all affect my pain. Some days I just want to curl into a ball and cry, others, I can walk and move with formerly forgotten fluidity.
You don't get over it. You push thru, learn to bend around the pain, and do what you need to do to get thru the day.
I started RA meds a few weeks ago and have been tracking pain etc to see if/how they're working. I know weather affects me so I've been tracking that too. It's a very small experiment but there seems to be a pattern to barometric pressure. Low barometric pressure - under 1010 hPa and the aching starts & gets worse the lower it goes. 1010hPa and higher and I feel much better. I have no idea what hPa is but fortunately I can just track the pressure on my phone weather app. Unfortunately I haven't found an app to forecast barometric pressure.
I've had a typical day today. I started out pretty pain-free. I had some errands to run (Best Buy, Bead and Bath, and Barnes and Nobel.) I used my walker - took my time - didn't do any lifting - I thought everything was going fine - WRONG! In the middle of B&N my body said "That's Enough" Total shut down. My back pain went up to an 8 (had to sit down immediately before I would start screaming). I found an out of the way corner of the store and sat down on my walker for about 10 minutes. The clerk asked me several times if I was alright. How do you explain pain like that to a stranger. The pain slowly eased up enough. All I need to do was get myself to my car. When I stood up the pain in my feet kept me from going very far. I did make it home and settled in my chair. It just amazes me how quickly one can go from have an ok day to one of major pain.
@A myRAteam Member, you're so right about missing "the old you". When we get sick with RA or Fibromyalgia (I have both) , you go through a period of mourning for what you used to be able to do. And, if you're like me, you also get angry at yourself. And tend to get low. That's when you need your truly caring friends even more. I'm not talking about the folks who love to play I'm worse off than you are. Those idiots you need to leave on the kerb where they belong! They don't fit into your support system or your life anymore!
I know it sounds harsh; but you must do everything you can for yourself. A good outlook is key. My very cracked sense of humour is the only thing that keeps me going many days.
I'm off the soapbox! Bright Blessings & love to all!