I was just reading an article on http://www.rheumatoidarthritis.net about how people with RA will say "I have to take my 'chemo' today" rather than calling it 'methotrexate'. I have no problem with anyone calling MTX Chemo because it is infact a Chemo drug. When I was on MTX for Wegner's Granulomatosis years ago I called it chemo because the pills made me vomit and lose my hair but I only said it to my family and a close friend. I don't think that I would feel comfortable using it regularly… read more
I think I mainly use the word "chemo" with people who don't really get how bad this can be. I am very mobile at this point and still work, so people assume i'm better than i really am most days. I have also learned to cope with severe migraines and still teach, so i have probably developed some strategies that make me look ok. With that said, I always explain that it is very low dose compared to it being used for cancer. I do not want to misinform people, but I do want them to understand. I don't feel I'm being dramatic or overselling it. Some people just don't get it!
Well @A myRAteam Member I get where your coming from, it's very overwhelming. But as long as you know lots of people, me being one, are here when ever you need a chat 😊.
@A myRAteam Member you had written that methotrexate is poison which is so true. Chemo therapy drugs where developed years ago from Mustard Gas which you know was used during the war. I learned this from a documentary recently and it blew my mind.
Well just had my MTX dosage increased first time i took them felt sick but after a few weeks taken them feel ok ,no hair loss.Has anyone had the Kenalog injection if really bad clears achs and pain within a few days.But it won't last,longest for me was 10weeks.Pain was not as bad when returned.
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