My new treatment in July will be Actemra infushions. I was just wondering if anyone has had the infushion? I read a lot about it but I would rather here it from someone who got the infusions. I have been through so many different treats and infusions and none yet to respond. I really hoping this would be the one that will respond to my RA. Thanks ... Tamara
Good luck, Tam, and hang in there. Give it a real chance. It's really the best I've tried, yet. Tomorrow is infusion #4. I can lift my left arm up all the way to the side, which I haven't been able to do for years. Just my two cents: give it six months. If it gives you remission, it's worth the drive every four weeks. If it doesn't, try something else. You have options, and not all biologics are the same.
Hi Tam. How are you feeling? I also started on the Actemra infusions in July. It slowly started working after my second infusion, but I didn't realize it until the fourth week, when pain returned. Now I am one week out from my fourth infusion and the same thing is going on. Virtually 3 weeks pain free, then pain and stiffness comes back. I am glad I also take prednisone to help with this "off" week. I will be interested to hear about your experience!
Dee I am still in lot of pain also. I truly understand the pain. RA is so painful. It's so frustrating to even try get someone to understand who don't have it. Hugs ❤️
@A myRAteam Member - unfortunately since I last answered your question, I have once again changed medicines. I am now on Xeljanz. The Actemra shots are not as effective as the infusion. I was not getting the same results with the self- injection as the Infusion.
I hope you get some pain relief soon! I know how it is to have bad pain.
Take Care & keep your head up ;). Hugs!
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