I just had my first visit with my new RA Dr that will try to work within my budget for treatment. He told me that RA only effects the middle finger knuckles not the ones by the fingernails. Has anyone else been told this and if so which of your knuckles are damaged?
He's definitely wrong. I have RA deformities in all knuckles
My knuckles near the fingertips on both hands are messed up. They are noticeably bent and do not straigten. The one on my right was the first joint I visibly saw even before I was diagnosed with RA. My left one started looking the same shortly after my diagnosis.
Actually....it's only kind of correct. It's true that that is a very common joint to be effected, but there are no joints that are, by definition, immune to RA. Any joint that has a synovial lining is "fair game." And unfortunately there are lots of spots that one doesn't normally think of as a "joint" for which this is true. The sternochondral joint is a good example (where your ribs connect to your breast bone). The same is true of the vertebro-chondral joints ((where the ribs insert into the vertebrae of the spine). Lots of folks with RA have pain and stiffness at those sites from time-to-time and it can be confusing and frustrating until one realizes that they are joints (necessary to allow our rib cages to expand). Once your realize how many joints we actually have, the confusion goes away (though the frustration doesn't 😊).
I think the more important thing to recognize about RA though, is that it is not "just" a disease of the joints. The entire body can be - and is - effected by the autoimmune-induced inflammation. The joints are the most obvious and painful spots, but they are by no means all that is effected. For some people, the joints are all that are relevant throughout their lives with the condition, for others, the effects on other organs can be dramatic.
Which is relevant to your question in that trying to "ration", or " focus" treatment (I've known a few people who only allow joint injections, but won't take meds that effect their whole body) by focusing on "just the joints" is often a losing strategy. RA is so much more complex than that. It really is a whole-body disorder and is most-effectively treated as such.
That seems ridiculous. I have nodules growing on my pointer finger and starting to find holding cups getting harder.
Nonsense, all finger joints can (and have in my case) be affected by RA, joint damage may occur after a time, nodules on either side of the joints can appear, ulnar drift ( where your fingers slope away from your thumb) and various other named conditions (Boutonnieres etc).
Keep up your hand exercise, wear fingerless gloves outside and in the house when it is cold and get your nails done now and then.
Doesn't help the RA, but makes you feel better!
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