Hello everyone! I hope you all are well. I just did my second dose of methotrexate yesterday .5ml injection. No problems. I still have stiffness in my fingers and wrist and a little flare in my shoulder and jaw but Alevs took care of that. Next month my doctor is moving me to 1ml per week of methotrexate. I'm wondering if any of you just use methotrexate only and no biologicals. I pushed her to start me on them right away but because I have minimal swelling and too few joint involvement she… read more
I take methotrexate 20mg a week and Remicade I've had RA since I was a toddler. My RA is very severe all my joints are involved. I have joint replacements in my knees, both thumbs and wrists. So the Remicade was added to methotrexate, prednisone, folic acid, plaquinal, and vitamin D 10 years ago. I have had flare ups but not as frequent or severe as they were before the Remicade. They usually progress you along with drugs as the disease progresses. There's no cure just control. Most doctors will start small and add on if your symptoms do not improve. I've had a lot of experience with this disease since I was a toddler when they suspected I had RA and treated me with prednisone up to today at 65 yrs of age. If you do well on methotrexate I believe your doctor will wait before putting you on more Meds. Because if you are like most of us with RA you will need medication for the rest of your life and they all come with side effects. Since I've had it for so long every time I've tried to come off any of my current Meds I've had major flare ups. My advice would be not to be in a rush to go on other Meds if your symptoms can be controlled with the methotrexate. Just speaking from years and years of living with RA.
Great attitude, first of all! Methotrexate was so wonderful for me. I did it by itself and eventually, over time, gradually, I needed more and more. But, those good years. I then added biologics. I stayed on both for years as well. Eventually, my liver started to show signs. I went off of it and the liver went back to normal. If you have swollen lymph nodes contact your doctor right away.
So that is my thought on methotrexate. I loved it. You also should not count on it being severe necessarily. These drugs are amazing compared to the past. This will slow progression as well. You will still get flares but not as many, not as strong and your life will improve.
Watch out for being around sick people. Get rest and exercise, even walking is fine. Do not push it. RA can effect tendons, ligaments and body parts. SO be gentle and stretch too.
Those are my thoughts. Good luck to you. Continue to be on top of it. - Bobby Sue
Well that said though, I also take gabapentin but it is more for helping the nerve pain I have and the muscle spasming caused by the osteoarthritis I also have in my back. The gabapentin while prescribed by my rheummy is not for the rheumatoid I have. We are all different and communication with your docs is key to finding what will work best for you.
Methotrexate just quit working for me. I'm on biologic Remicade infusion best pain and joint relief so far my pain has almost gone, no need for nsaids, and fatigue is much better. I still have some pain meds prescribed but use is less then half of what is was since Oct.
It has been my experience due to the severity of my RA that Methotrexate & folic acid alone do not do the trick. However, for many newly diagnosed it most likely does work. It all depends on the severity of the symptoms. For me adding Remicade has been my miracle. Every medication used to treat chronic diseases come with many side effects. I don't even worry myself about them any more. I just want as good of a quality of life as I can get while dealing with this very debilitating disease. I take a cocktail of meds which consists of: MTX 20mg 1/week, Remicade 400mg every 5 wks, prednisone 5mg/day, Plaquinal 200mg 2/day, folic acid 5 days a week (hold on day I take MTX) I have severe RA so that's why I'm on so many meds. My doc monitors my labs very closely. And I get to have a good quality of life.
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