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Anti-CCP Test Results...what Is The Highest You've Seen?

A myRAteam Member asked a question 💭
Leroy, MI

I know greater than 60 is a strong positive, but what is the highest anyone has seen? Mine was 137.

August 31, 2015
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Answer Summary

Members compared their Anti-CCP test results after someone asked about the highest levels others had seen, with responses ranging from 43 to... Read more

Members compared their Anti-CCP test results after someone asked about the highest levels others had seen, with responses ranging from 43 to over 1,000, and many sharing that their labs stopped measuring above 300 or 340. Several members noted that doctors typically don't recheck Anti-CCP after diagnosis since it's primarily used as a diagnostic tool, though some expressed confusion about whether higher numbers correlate with more aggressive disease or faster joint damage. A recurring theme was concern about disease severity, with many members sharing that positive RF and Anti-CCP together may signal more aggressive rheumatoid arthritis, prompting questions about treatment effectiveness and the unpredictable progression of symptoms affecting hands, feet, and hips.

A myRAteam Member

RF 177 and CCP >300

April 25, 2017
A myRAteam Member

I have been diagnosed in 2012 my RA factor is still neg but my CCP is now 340 is on treatment but maby not the right treatment?

October 15, 2016
A myRAteam Member

My highest After Chemotherapy was 94. It is Now 64, because I am only on Prednisone for the R.A.!! I cannot take anything especially now that I have Congestive Heart Failure! Taking Life 1 day at a time!

March 25, 2020
A myRAteam Member

When I was diagnosed 06/18, my RF was less than 10.0 U/mL, and CCP was 179. I thought I'd seen RF negative somewhere, but now I can't find it. It does say it should be less than 14 U/mL, and I guess mine was. My C-reactive protein had been high, but is normal now. My Dr acted like they never recheck the CCP? In my last 3 mo CBC labs, they were good, except my platelets had gone up from 260 to 361? They've always been mid-200s, going way back. 361 is still in normal range, but has anyone else ever had theirs jump like that? Thx!

February 25, 2019
A myRAteam Member

RF negative
CCP 147
Just diagnosed a week ago but they will be starting me on Plaquenil.

April 13, 2017

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