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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Feel Like A Whimp When They Have To Admit That They Are Just Not Having A Good RA Day?

A myRAteam Member asked a question 💭
Pittsburgh, PA

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

July 15, 2015
A myRAteam Member

So true can not make plans and if I do and cancel friends don't understand.

April 12, 2023
A myRAteam Member

I absolutely understand. If I say I’m having a bad RA day, people don’t see the fatigue, exhausted to the core feeling or the pain. I have withdrawn alot over the last few years because it can be hard to plan things because every day is different.

April 12, 2023
A myRAteam Member

I totally feel the same. If you don’t look sick, friends and family often assume you are fine, maybe just having a bad day but not because you hurt, it’s frustrating.

April 25, 2023
A myRAteam Member

No your not a whimp, I have gone to the ER at least 4x. I feel like I'm in the way with someone who really needs to be there. But the pain was so unbearable I couldn't breath, speak, walk, I had my caregiver call I was seen double, lost balance, trouble
speaking or making sense. We need not feel guilty on what we feel, because it takes us longer to do things. Your bosses need to know. You can hurt yourself or worse. Please don't feel bad because you don't feel good.
I was put on perminately disabled, no one will hire me because I'm a liability. See SS to see if you can get disability, talk to you Rumotolgist. I hope you feel better remember be good to yourself
You are worthy
You are smart
You are important
You are loved
God Bless You
Stay strong

March 4, 2023
A myRAteam Member

Since we "look" perfectly healthy, it is difficult for people to understand. Hang in there. Anyone with an autoimmune disease, heart condition, or mental disorder, can verify the pain and struggles are real.

February 26, 2023

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