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How Did Your Doctor Diagnose Your RA?

myRAteam asked a question 💭
San Francisco, CA
December 17, 2014
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Answer Summary

Members shared a wide variety of diagnostic experiences in response to a question about how doctors identified their RA, with bloodwork... Read more

Members shared a wide variety of diagnostic experiences in response to a question about how doctors identified their RA, with bloodwork (especially RF factor, CCP, CRP, and ESR levels) being the most common method, often combined with X-rays, MRIs, ultrasounds, and physical exams of swollen or painful joints. Several members described frustratingly long diagnostic journeys, including being dismissed with labels like growing pains or stress, waiting months or years for symptoms to show up in bloodwork (particularly for seronegative RA), or needing to self-advocate and even demand testing before finally receiving confirmation. A recurring theme was the emotional toll of navigating the diagnostic process, from fear and desperation during severe initial flares to relief at finally having an answer, even when that answer meant living with a chronic condition, with many emphasizing the importance of persistence, second opinions, and trusting your own body when something feels wrong.

A myRAteam Member

My mom said I use to cry all night about pain, it took four doctors and her threatening to sue for them to send me to a pediatric specialist and was diagnosed, she said xrays and blood work were used to diagnose me when I was 4, I am RF positive and given that two other people have it and its skipped a generation, I'm the youngest that we know of in the family.

December 20, 2014
A myRAteam Member

I am seronegative. I was dx based on symptoms of hand, hip, and knee pain. My first flare was severe. I couldn't walk or stand up straight for a week. My muscles were extremely fatigued resulting in a few falls. I was first ruled out for MS and myasthenia. At first I was angry because I just wanted a diagnosis. I was scared and in desperate need of treatment. Looking back, I am grateful that it wasn't something worse.

December 18, 2014
A myRAteam Member

No results from hospital Rheumatology blood tests, no rhematoid factor. Xrays showed joint damage so given diagnosis. That's 23 yrs I have had the diagnosis following a virus which my little children brought home from school, they were poorly, high temp off school for a week, my husband ill for a day. I was ill but vomiting and couldn't eat for 3 weeks.
Once well again, within a couple of weeks I was waking up with stiffness in a different finger over 10 days. I remember laughing about it and saying this is weird then my feet started to be affected so I went to the GP
Rheumtologist asked me if had been ill prior to onset and then said many patients are.
I know this is a long time ago but there was no attempt to find what bacteria /virus was hiding/causing/ prempting/ stimulating immune system to attack :( Hope it is different now.

October 6, 2018
A myRAteam Member

I had fatigue, fever symptoms, and bilateral hand, shoulder pain for over a year. I finally had to switch MDs to get an answer. Was sent to Rheumatologist, then blood work was positive, RA factor positive.

February 5, 2017
A myRAteam Member

I started out at a podiatrist for ball of foot pain and my toes going a bit wackadoodle. He sent me for blood work to test for RA, which I thought was just a formality; I couldn't have something like that! Well, blood tests came back positive, and next thing I know I'm getting a call to schedule an appointment with a rheumatologist. It really blindsided me. I've had various aches and pains, but put it down to my weight and my age. Still having trouble accepting this condition.

April 15, 2015

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