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How Long Did It Take For You To Get Diagnosed?

How Long Did It Take For You To Get Diagnosed?

I’ve had joint pain since February which isnt too long but my pain seems to be very gradual. I have not had pain to the point where I can not walk or go to work yet. My lab work is normal and my rheumatologist still thinks I have RA but says we will wait and see. Did anyone else have to wait for their labs to catch up or for their symptoms to get worse before getting diagnosed?

A myRAteam Member said:

In 1965, they kept me in the hospital for 3 days for testing. Seems silly now cuz now days it would have been an outpatient event. I had a flare up on my knee. They didn’t even drain the fluid. They just prescribed aspirin and sent me home.

posted almost 3 years ago
A myRAteam Member said:

It took my Family Dr. 5 months to figure out I needed to see a RA specialist after months of flare ups

posted almost 3 years ago
A myRAteam Member said:

It took a few years for me (I'm 23) and yes for me it was waiting until it got bad enough to be able to know what it was. It started with my hands and wrists, I had problems with them for a few years and was tested for Lyme disease among other things and there was nothing so I just dealt with it. Then about a year and a half ago I started having flu like symptoms horrible fatigue and malaise and they told me I probably had mono. Well this continued for about 6 months until the RA took over and made all my joints swell like balloons. Every step was excruciating I could not walk at that point. At that point they said there's no doubt that it was rheumatic. Now it is 7 months of plaquenil later and I am functional now although it is a struggle at times the treatment worked! I'm sorry you are going through that, hopefully you can get answers before it gets worse

posted almost 3 years ago
A myRAteam Member said:

Yes, misdiagnosed at first. Keep working with your Dr - early treatment helps reduce joint damage in the future.

posted almost 3 years ago
A myRAteam Member said:

I experienced this earlier this year. I did not get a diagnosis until there was indisputable proof of a flare unfortunately. Sometimes getting second opinions is helpful.

posted almost 3 years ago
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