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Is Getting A RA Diagnosis Extremely Difficult?

Is Getting A RA Diagnosis Extremely Difficult?

I have been seeing a rheumatologist regularly since November 2016 for joint pain. It has been in my fingers, toes, ankles and knees. Since February my left knee has been in pain off and on, sometimes it is severe and sometimes is better but never goes away. When it is in severe pain it pops and I swell up behind my knee in what they have called a smaller bakers cyst. I also recently have had enough swelling around my ankles to cause bruising where my socks are. I have been on two doses of prednread more

A myRAteam Member said:

You should see another doctor.
I can understand being cautious about prescribing medication if you didn't have any abnormal test results, but some people with RA don't have a positive rheumatoid factor. It's called seronegative RA. At the very least, you should have someone monitor your symptoms Abe blood tests every 3 months.

There are lots of different types of arthritis, not just RA, too. It sounds like they treated you for an infection with the doxycycline (antibiotics). There's another condition called Undifferentiated Connective Tissue Disease, which basically means you have symptoms but don't currently meet all the criteria for a definitive diagnosis.

Hope this helps and you find relief soon. Unfortunately, many doctors aren't sensitive to these issues, especially if there isn't an answer that's immediately apparent. Keep pushing until someone listens, and if you have a friend or family member who will go with you to appointments, it helps to have an advocate.

posted over 4 years ago
A myRAteam Member said:

I am so sorry to hear about what you are going through. I went a few years undiagnosed, until-rays came back displaying joint damage. Only then was I labeled with SeroNegitive Rheumatoid Arthritis. 38% of RA suffers have this diagnosis. http://www.everydayhealth.com/rheumatoid-arthri... This is a great article I found helpful.
I hope you get a new doc, someone who will listen and go to bat for you. Stay strong, we are all cheering for you! <3

posted over 4 years ago
A myRAteam Member said:

A second opinion is in order. Don't delay, as your joints may be deteriorating while your doctor is trying to reach a proper diagnosis. My PCP took longer than I was comfortable with in addressing my joint pain. He finally order some blood work which resulted in a lupus diagnosis and led to a referral to a rheumatologist. In the meantime my PCP referred me to a physical therapist, prescribed an ointment which had no effect, and suggested OTC painkillers. The rheumatologist first prescribed Embrel, which didn't help, so I was switched to Simponi after three months. The Simponi has helped me significantly over the past three years.

posted over 4 years ago
A myRAteam Member said:

Get a second opinion. Try and find a doctor that will not dismiss your symptoms. You deserve to be believed.

posted over 4 years ago
A myRAteam Member said:

My MD specialist I saw I was unhappy with as said because my RA blood test came back negative that I must have some undiagnosed Inflammatory Arthritis. He on what was going to be my last appointment with him he had a CRNP-Nurse Practitioner come in to see me before him. She cared about helping me and has me get appointments with her every 3 months and gets bloodwork done. She has treated me for 10 years now and I am lucky to have her. I don’t know who your specialist is but if you leave upset and to come back that infrequently then you may need to find another specialist at least a second opinion. A caring Physician’s Assistant or Nurse Practitioner can help you if find one that specializes in various types of RA including Fibromyalgia and S’Jorens disease plus others.
Just because has an MD in title doesn’t make them right medical provider.

posted 5 months ago
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