How long did it take you to recieve an official RA diagnosis? What were some of your smptoms you were experiencing?

How long did it take you to recieve an official RA diagnosis? What were some of your smptoms you were experiencing?

What were some of your smptoms you were experiencing? I have joint pains in hands, wrist, knees, plus swelling in hands & knees, fatigue and run low grade fevers when I'm in flare up. my blood work is negative but x-rays show active disease. So my rheumy diagnosed with Inflammatory polyarthritis- suspect earlier onset RA. This has been a long an overwhelming process.......

A myRAteam Member said:

It took a few years of going to doctors before I was diagnosed. My RA was not like the typical onset you read about. I was exercising like I always have and watching my diet, but I started experiencing terrible foot pain and unexplained weight gain among other things. A gynecologist actually had the nerve to tell me the only thing wrong was I needed to move more and eat less! After about a year, I saw a doctor who listened to me and immediately ordered a thyroid test. I had hypothyroidism. About a year after that, my pcp diagnosed me with Fibromyalgia. Two years after that I asked him to refer me to a rheumatologist who then diagnosed me with RA. Like you, I am seronegative. However, my Vectra DA tests show my disease to be severe. It can be overwhelming, but you are your best advocate. Don't give up. Finding doctors who listen that you can trust is very important. Also, having family and friends to lean on helps.

posted over 4 years ago
A myRAteam Member said:

I was officially diagnosed when I was 11/12 but had been experiencing pain and flares since I was quite young about 5/6. Doctors initially wrote it off as "growing pains" or symptoms from high/low blood sugars (diagnosed with type 1 diabetes when I was 9) but went for more extensive testing out of town at a children's hospital where it was later discovered I have juvenile onset inflammatory arthritis (later RA) and a condition where the ligament's/muscles on the insides of my knees are very weak (can't think of the name right now.) And you are quite right, this journey we all deal with is a long and tiring one, but remembering to stay positive, do what you can when you can, to rest when you need to, and to have support whether through family/friends or sites like this we can all come out saying we got this! xo

posted over 4 years ago
A myRAteam Member said:

I was diagnosed recently after seven months of unexplained and/or misdiagnosed pain and swelling in my foot. However, over the past 20 years or so, I've been tested several times for RA ( due to joint pains)and it always came back negative. I've also suffered with tendinitis in my arms, shoulders, ankles. I tore my biceps tendon and had to have it surgically repaired. No one ever put my joint pains and tendinitis together as an indication of RA. I was having severe dry eye that developed at same time as my foot problems. After reading that dry eye can be symptom of RA, I went to a rheumatologist. Blood work showed my anti-CCP level to be quite high. It's not uncommon for someone to be RF negative but to have high CCP -- a strong indicator for RA. If I hadn't been obsessive in my research, I still might not know I have and have had RA for awhile. I was the one who suggested this to my PCP. Thankfully, she listened to me. You have to be your own advocate.

posted about 4 years ago
A myRAteam Member said:

It took 10 years for me to be diagnosed with RA. I had seen a doctor at 25 who suspected but the test came back negative. 10 years later I had a stress fracture of my left foot and saw a podiatrist. I was having a lot of heel pain also and he couldn't figure out why until he ran a RA test that came back positive. I have been on various drug therapies since then. {1985} I am now in remission on simponi and methotrexate. Most of my problems have been in my feet, with some in both hands also, but not as bad there. It seems to run in my family, my mom's side, and have aunts, uncles, and cousins who also have it. The older relatives had a lot of hand disfigurment, so twisted they could barely use them. Thank God I have been able to avoid that. Pat McCauley

posted over 4 years ago
A myRAteam Member said:

The blood test for RA is not conclusive. There are a lot of false negatives, the x-rays are more definitive.

posted over 4 years ago
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